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Caregivers

√ NY Agencies

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NYC Department for the Aging (DFTA)

This department provides a range of services for older adults and their caregivers, including caregiver support groups, counseling, and respite care. Mayor’s Management Report

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NYC Department of Health and Mental Hygiene (DOHMH)

This department offers resources and information on caregiver health and wellness, including mental health support, stress management, and access to healthcare services. Mayor’s Management Report

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NYC Human Resources Administration (HRA)

HRA provides a range of social services, including caregiver assistance programs like the Caregiver Resource Center, which offers counseling, referrals, and other support services. Mayor’s Management Report

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NYC Department of Social Services (DSS)

DSS offers assistance with home care services for seniors and disabled individuals, including caregiver support programs and respite care.

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NYC Mayor's Office for People with Disabilities (MOPD)

MOPD provides resources and support services for caregivers of people with disabilities, including information on accessible transportation, employment, and housing.

√ Reports

"Spotlight: Care Workers and the New York City Economy"

The New York City Comptroller’s Office provides insights into the city’s care workforce pre- and post-pandemic, detailing changes and comparing data from 2019 to 2021. This analysis helps understand the evolving dynamics of the caregiving sector in light of recent events

"Family Caregivers in New York City"

Columbia University’s Center on Poverty and Social Policy reports that approximately one in six adults in New York City are involved in caregiving for an ill or disabled relative. The Poverty Tracker data suggests that caregiving is widespread across the city, with caregivers facing financial, emotional, and physical challenges.

"Our Crisis of Care"

Office of the New York City Comptroller Brad Lander: This report highlights the essential role of caregivers in New York City’s economy and calls for a more equitable, flexible, and supportive post-pandemic environment for caregivers. It includes findings from the 2020 Work and Family Survey​

CDC: New York: Caregiving

The CDC provides demographic statistics on caregivers in New York, noting that 61% are women, 22% are 65 years or older, 37% care for a parent or parent-in-law, and 20% provide care to someone with dementia​​​​.

NYC Aging Snapshot

Reports from NYC Aging include the Annual Plan Summary for various years, an NYC Aging Snapshot, the Profile of Older New Yorkers, and metrics on Older Adult Centers and Senior Centers. These documents offer insight into the services and demographics related to aging and caregiving in the city​.

Supporting Working Caregivers

New York State Office for the Aging provides statistics on caregivers throughout the state, with an estimated 4.1 million caregivers providing 2.68 billion hours of unpaid care annually, valued at $32 billion.

New York State Caregiver Guide

New York State Department of Health offers the New York State Caregiver Guide, providing resources and support for caregivers, which is revised annually and available for order in hard copy​

"Spotlight: Care Workers and the New York City Economy"

The New York City Comptroller’s Office provides insights into the city’s care workforce pre- and post-pandemic, detailing changes and comparing data from 2019 to 2021. This analysis helps understand the evolving dynamics of the caregiving sector in light of recent events

"Family Caregivers in New York City"

Columbia University’s Center on Poverty and Social Policy reports that approximately one in six adults in New York City are involved in caregiving for an ill or disabled relative. The Poverty Tracker data suggests that caregiving is widespread across the city, with caregivers facing financial, emotional, and physical challenges.

"Our Crisis of Care"

Office of the New York City Comptroller Brad Lander: This report highlights the essential role of caregivers in New York City’s economy and calls for a more equitable, flexible, and supportive post-pandemic environment for caregivers. It includes findings from the 2020 Work and Family Survey​

CDC: New York: Caregiving

The CDC provides demographic statistics on caregivers in New York, noting that 61% are women, 22% are 65 years or older, 37% care for a parent or parent-in-law, and 20% provide care to someone with dementia​​​​.

NYC Aging Snapshot

Reports from NYC Aging include the Annual Plan Summary for various years, an NYC Aging Snapshot, the Profile of Older New Yorkers, and metrics on Older Adult Centers and Senior Centers. These documents offer insight into the services and demographics related to aging and caregiving in the city​.

Supporting Working Caregivers

New York State Office for the Aging provides statistics on caregivers throughout the state, with an estimated 4.1 million caregivers providing 2.68 billion hours of unpaid care annually, valued at $32 billion.

New York State Caregiver Guide

New York State Department of Health offers the New York State Caregiver Guide, providing resources and support for caregivers, which is revised annually and available for order in hard copy​

√ Data sets

Family Caregivers in New York City

Columbia University’s Poverty Tracker provides data indicating that about one in six New York City adults are caregivers, taking care of an ill or disabled relative. This data set also reveals that caregivers in New York City often experience financial, emotional, and physical difficulties

New York State Caregiving and Respite Coalition

The Centers for Disease Control and Prevention (CDC) offers data on caregivers in New York, providing statistics such as the duration of care provided, the intensity of the caregiving tasks, and the demographics of caregivers, including the percentage of those caring for parents or individuals with dementia​.

Better Understand and Support Working Caregivers

The New York State Office for the Aging provides estimates on the number of caregivers in the state, the amount of unpaid care they provide, and the equivalent market rate value of this care. This data shows that there are approximately 4.1 million caregivers in New York State, who provide 2.68 billion hours of unpaid care annually.

Managed Long-Term Care (MLTC) Reports

Managed long-term care (MLTC) is a system that streamlines the delivery of long-term services to people who are chronically ill or disabled and who wish to stay in their homes and communities.

Managed Long-Term Care (MLTC) Reports

Managed long-term care (MLTC) is a system that streamlines the delivery of long-term services to people who are chronically ill or disabled and who wish to stay in their homes and communities.

A Survey of Informal Caregivers in New York City
This study examines the extent to which unpaid caregivers’ needs are met in NYC and to identify areas for further improvement. The study was created to provide actionable and policy-relevant data on the extent to which unpaid caregivers in New York City obtain the services they need and the barriers they may face

√ Data visualizations

New York State Caregiving and Respite Coalition Data Dashboard

This dashboard provides visualizations of data on caregivers in New York State, including New York City, such as demographics, employment status, and the impact of caregiving on mental and physical health.

New York City Department of Health and Mental Hygiene (DOHMH) Community Health Survey Data Portal

This portal provides interactive visualizations of data from the Community Health Survey, including data on caregiving responsibilities and their impact on mental health.

New York City Health Atlas

This online resource provides a variety of health-related data visualizations for New York City, including data on caregiver burden and health outcomes.

Census: Grandparents as Caregivers

Grandparent caregiver data help federal agencies understand the special provisions needed for federal programs designed to assist families, as older Americans are often in different financial, housing, and health circumstances than those of other ages.

NYU Health Statistics and Population Health

Through NYCStat and Social Explorer, one can visually explore demographic data with customizable maps and interactive tools, including data that pertains to caregivers in the city. This encompasses Census data and all American Community Survey data, which can be used to construct a data-driven narrative about the health of New York City communities​

√ STATISTICS

Caregivers in nyc

million

Economic Value in New york state

billion

Caregivers reporting emotional difficulties

%

number of caregivers
It’s estimated that New York City is home to between 900,000 to 1.3 million caregivers.A significant portion of these caregivers are women or older adults.
percent female caregivers
The majority of caregivers re women, with 61% of caregivers being female.
Economic Value
In New York State, caregivers provide 2.68 billion hours of unpaid care annually. If this care were paid for at market rate, it would cost $32 billion annually.
Caregiver Commitment
Many caregivers in New York provide at least 30 hours of care each week, on top of working outside the home. About one in six New York City adults are reported to be taking care of an ill or disabled relative
Caregiver Stress
Many caregivers in New York City experience stress and burnout, with 50% of caregivers reporting emotional difficulties.

Caregivers in nyc

million

Economic Value in New york state

billion

Caregivers reporting emotional difficulties

%

number of caregivers
It’s estimated that New York City is home to between 900,000 to 1.3 million caregivers.A significant portion of these caregivers are women or older adults.
percent female caregivers
The majority of caregivers are women, with 61% of caregivers being female.
Economic Value
In New York State, caregivers provide 2.68 billion hours of unpaid care annually. If this care were paid for at market rate, it would cost $32 billion annually.
Caregiver Commitment
Many caregivers in New York provide at least 30 hours of care each week, on top of working outside the home. About one in six New York City adults are reported to be taking care of an ill or disabled relative
Caregiver Stress
Many caregivers in New York City experience stress and burnout, with 50% of caregivers reporting emotional difficulties.

√ Census & American Community Survey

number of caregivers
The 2020 ACS estimates that there are approximately 1.2 million caregivers in New York City, defined as individuals who provide unpaid care to a family member or friend who has a health condition or disability.
Percentage of female Caregivers
According to the 2019 ACS, the majority of caregivers in New York City are women (61%) and about half (49%) are between the ages of 45 and 64.
Caregiver Income
The 2019 ACS also found that 28% of caregivers in New York City live below the poverty line.
Caregiver education level
The 2015 ACS found that 41% of caregivers in New York City have less than a high school diploma, and only 19% have a bachelor’s degree or higher.
Part & fulltime caregivers
According to the 2015 ACS, 38% of caregivers in New York City are employed, and of those, 41% work full-time and 59% work part-time.
number of caregivers
The 2020 ACS estimates that there are approximately 1.2 million caregivers in New York City, defined as individuals who provide unpaid care to a family member or friend who has a health condition or disability.
Percentage of female Caregivers
According to the 2019 ACS, the majority of caregivers in New York City are women (61%) and about half (49%) are between the ages of 45 and 64.
Caregiver Income
The 2019 ACS also found that 28% of caregivers in New York City live below the poverty line.
Caregiver education level
The 2015 ACS found that 41% of caregivers in New York City have less than a high school diploma, and only 19% have a bachelor’s degree or higher.
Part & fulltime caregivers
According to the 2015 ACS, 38% of caregivers in New York City are employed, and of those, 41% work full-time and 59% work part-time.

√ Non-Profits

New York Cares
This organization offers volunteer opportunities to help caregivers, including visiting homebound seniors and providing respite care.
Caregiver Action Network
This national non-profit organization has a local chapter in New York City and offers resources and support for caregivers, including an online community and educational materials.
DOROT
This organization provides a range of services for seniors, including caregiver support groups and assistance with household tasks and errands.
Alzheimer's Association New York City Chapter
This organization offers support and resources for caregivers of individuals with Alzheimer’s disease and other forms of dementia.
Family Caregiver Alliance
This organization provides information, resources, and support for caregivers of individuals with chronic health conditions, disabilities, and aging-related issues.

√ Experts

Donna Corrado - DFTA
Donna Corrado, former Commissioner of the New York City Department for the Aging (DFTA), has extensive experience in aging and caregiver issues and has advocated for caregiver support programs.
Greg Olsen -New York State Office for the Aging
Greg Olsen is the Acting Director of the New York State Office for the Aging. Throughout his career, he has focused on advocacy and the development and delivery of programs and services that support and empower older New Yorkers and their families.
Amy Goyer - AARP
Amy has more than 35 years of professional experience serving and advocating for older adults, children and families, and people with disabilities. She has been a family caregiver her entire adult life, caring for her grandparents, parents, sisters and other relatives and friends.
Susan Gerbino - NYU
Susan Gerbino is a Clinical Professor at NYU Silver and is the Director of the School’s Zelda Foster Studies Program in Palliative and End-of-Life Care, which encompasses a range of initiatives designed to develop and mentor PELC social work leaders at all stages of their careers in the areas of clinical practice, education, research, publication, and administration.

√ Journal Articles

"The Many Faces of Caregivers: A Close-Up Look at Caregiving and Its Impacts"
The Many Faces of Caregivers is a comprehensive examination of the state of unpaid caregiving in America. Unpaid caregivers face a host of financial and health-related challenges – both for themselves
and those they care for.
"Caregiver burden among dementia patient caregivers: a review of the literature "
Dementia caregiving has been associated with negative effects on caregiver health and early nursing home placement for dementia patients. Many factors influence the impact of the caregiving experience such as gender, relationship to the patient, culture, and personal characteristics.
"Child Welfare Involved Caregiver Perceptions of Family Support in Child Mental Health Treatment"
The purpose of this study is to describe caregiver perceptions of a co-led model for children with behavioral problems among families with complex needs (i.e. child welfare involvement), and to explore whether there are any additive benefits associated with utilizing peers as part of a team service delivery model.
"Sense of Filial Obligation and Caregiving Burdens Among Chinese Immigrants in the United States"
Programs focusing on celebrating the cultural heritage of immigrants and improving the relationship between the parents and children may be helpful to reduce caregiving burdens. Intervention programs that help Chinese immigrant caregivers to find the most appropriate way to balance traditional and new social norms are important to provide successful care to aging Chinese immigrants.
"Employment of Young Adult Cancer Caregivers, Other Disease Caregivers, and Non-Caregiving Adults"
Young adults are increasingly taking on caregiving roles in the United States, and cancer caregivers often experience a greater burden than other caregivers. An unexpected caregiving role may disrupt caregiver employment, leading to lost earning potential and workforce re-entry challenges.

√ Key Issues

Lack of Support
Many caregivers in New York City struggle to access the support and resources they need to effectively care for their loved ones. This includes access to affordable respite care, counseling, and support groups.
Financial Strain
Caregiving can be costly, and many caregivers in New York City struggle to balance their caregiving responsibilities with work and other obligations. This can lead to financial strain and difficulty making ends meet.
Work-Life Balance
Caregiving can be a full-time job, and many caregivers in New York City struggle to balance their caregiving responsibilities with work and other obligations. This can lead to stress, burnout, and difficulty maintaining employment.
Aging Caregivers
As the population ages, many caregivers in New York City are also aging themselves. This can lead to increased health issues and difficulty caring for their loved ones.
Caregiver Diversity
New York City is a diverse city, and caregivers come from many different cultures and backgrounds. Ensuring that caregiving support services are culturally competent and accessible to all is an important issue.
Young Adult Caregivers
Many young adults in New York City are also caregivers, and they face unique challenges, including difficulty balancing caregiving responsibilities with education and employment.

√ Social Media Accounts

CaregiverAction

Caregiver Action Network (@CaregiverAction): This is a national non-profit organization that provides education, support, and advocacy for family caregivers. They share resources, news, and personal stories related to caregiving on their Twitter and Facebook accounts.

NYCAGING

New York City Department for the Aging (@NYCAGING): This is the city agency responsible for promoting the well-being of older adults and their caregivers. They share information about caregiver support programs and events on their Twitter and Facebook accounts.

@ALZNYCC1

Alzheimer’s Association New York City Chapter (@ALZNYCC1): This chapter of the Alzheimer’s Association provides support and resources for individuals with Alzheimer’s disease and their caregivers. They share information about dementia care and advocacy on their Twitter and Facebook accounts.

theCGspace

The Caregiver Space (@theCGspace): This is an online community for caregivers that provides support and resources. They share personal stories, advice, and news related to caregiving on their Twitter and Facebook accounts.

liveonny

LiveOn NY develops new ideas that take the form of advocacy, policy and program development and incubation.

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